The proof beauty really is only skin deep: 26-year-old branded ‘world’s ugliest woman’ in YouTube video when she was a teenager makes documentary charting her transformation to anti-bullying activist

.Lizzie Velasquez was born with syndrome which stops her gaining weight 

• .She has Marfan and lipodystrophy and weighs just 58lbs at 5ft 2ins tall
• .At 17, she was horrified to discover a cruel YouTube video featuring her  
• .Fought back with an inspiring TED Talk which attracted millions of views 

By KHALEDA RAHMAN FOR MAILONLINE

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A documentary about Lizzie Velasquez charts her journey from victim to anti-bullying activist

Lizzie Velasquez has known the torment of being mocked by bullies from around the world.

As a 17-year-old surfing the web, she came across a video of herself on YouTube that described her as the 'world's ugliest woman'.

The devastated teenager spent days shutting herself from the world behind a wall of tears, thinking her life was over.

But now 26, the inspirational woman has hit back at the trolls with an anti-bullying documentary about her life, describing her battle with a rare condition which stops her putting on weight.

'A Brave Heart: The Lizzie Velasquez Story' premiers at the South by Southwest Film Festival in Austin, Texas, today. 

The 78-minute film charts Lizzie's inspiring path from cyber-bullying victim to anti-bullying activist.

Featuring details of Lizzie's emotional and physical journey through the years, it follows her progress as she attempts to lobby the US government for the first federal anti-bullying Bill.

She was born with Marfan syndrome and lipodystrophy, which is a problem with the way fat is distributed in the body. 

At only 5ft 2ins tall, Lizzie only weighs 58lbs - just over four stone.

'All we had known all my life was that I had a syndrome which meant that I couldn't gain weight.

'At the time, I thought everyone looked like me.

'I didn't recognise or tell that they didn't look like me.' 

First bullied as a child in school for looking different, she was horrified to stumble across a YouTube video labeling her 'The World's Ugliest Woman' as a teenager.

The video, viewed four million times, was accompanied by a cascade of cruel comments about her appearance - and suggestions that she should have killed at birth.

'It was afternoon. I decided to go look for music on YouTube - and that's when I found it,' she said.

'I don't even know why I clicked on it but I did and that's when I lost it.

'Calling me a monster or asking why my parents didn't abort me... how in the world can I forgive the people who told me to kill myself?' 

She fought back by giving a TED Talk in 2013 which she says 'changed everything'. 

'This is my purpose. This is what I'm meant to do for the rest of my life.

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A documentary (pictured, a still from the film) about Lizzie, who was born with a rare condition which prevents her from gaining weight, will premier in Austin today

'I like to think that I'm not only telling my story, I'm telling everyone's story.'  

Now, Lizzie's own YouTube channel, which boasts more than 300,000 subscribers. 

Speaking in a video posted to her channel ahead of her documentary's showing today, she said: 'I'm so excited, I can't even tell you.

'I finally was able to sleep and I'm feeling rested and ready to go.' 

Director Sara Hirsh Bordo said: 'Bullying is a subject that historically yields heartbreaking stories of hopelessness and in many times, loss. 

'Rarely is there a story of survival and inspiration that continues to crossover ages, genders, and ethnicities… enter the brave story of Lizzie Velasquez.'

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Speaking in a YouTube ahead of her documentary's showing in Austin, Texas, today, Lizzie said: 'I'm so excited, I can't even tell you'

The pair met when Ms Bordo asked her to give the TED Talk, which attracted more than 10million viewers. 

'She was a local hero whose time, we found out shortly after, had arrived,' she added. 

'We live in a culture of tremendous meanness. And few people have experienced it more than Lizzie.

'Lizzie chose to not give up, but to forgive and to thrive; as an author, as a speaker, and now as an activist.'

She added: 'What I wanted to show is that this is Lizzie’s film, but it is everyone’s story.'

'I THOUGHT EVERYONE LOOKED LIKE ME': WHAT IS MARFAN SYNDROME?

Marfan Syndrome is a rare genetic disorder that affects the body’s connective tissue, which hold the body’s cells and organs together. 

Connective tissue also plays an important role in helping the body grow and develop properly. 

Marfan affects about one in 5,000 people - and can affect men and women of all races and ethnic groups. 

Three-quarters of those who have it inherit it - and there is a 50% chance that someone with Marfan syndrome will pass along the genetic mutation each time they have a child.

But some are the first in their family to have it, which is called spontaneous mutation when it happens. 

People with Marfan syndrome are born with it, but features of the disorder are not always present immediately. Some features of Marfan syndrome, including those affecting the heart and blood vessels, bones or joints, can get worse over time.

This means it is important for early diagnosis and treatment in order to avoid the risk for potentially life-threatening complications. 

Source: Marfan Foundation